“From an outsider’s perspective, it can be difficult to understand that no matter how good a medically complex child looks, he or she may never really be “out of the woods,” so to speak. In the blink of an eye, things can go from calm to complete disaster.”
Yeah, Facebook is annoying. It’s overused and overexposed. But, for parents of children who have rare diseases or disorders, special equipment, body differences, or something that makes them extra unique… it’s the most precious invention, ever….
Researchers have identified a genetic mutation accountable for a metabolic disease among Inuit in northern Canada.