Tag Archives: Awareness

1st Annual T-Shirt Fundraiser a Success!

This should have been updated some time back, but things have been really busy around here.  Thanks to your enormous show of support, we sold over 250 t-shirts during our first ever T-Shirt Fundraiser.  From these sales, we were able to raise more than $3000 for Glycogen Storage Disease research.  Not only did you help by selling and purchasing shirts, but each time one of the t-shirts is worn, you are helping to spread the word about GSD!

Arabian Nights Fundraiser

In September, approximately 70 guests gathered at the home of Dr. Mary Missak in Memphis, TN, for Arabian Nights, Dinner & Entertainment.  Guests dined on authentic Egyptian cuisine prepared by the host and also enjoyed Middle Eastern influenced belly and fire dancing.  During our presentation about GSD you could have heard a pin drop, even the children were very interested.  The majority of the guests (many of them doctors) had never heard of or knew very little about Glycogen Storage Disease.  We feel that the night was a very big success in that we spread the word about GSD in our local community and raised $5500 for research.

Thank You for Your Support

It is time to catch up a little bit and let everyone know how successful our recent fundraising efforts have been.  First off, we would like to say Thank You to everyone who has participated in any way over the last few months.  Maybe you bought a T-shirt, or a raffle ticket, or voted on our Toyota Sponsafier submission.  Maybe all you did was tell someone about Glycogen Storage Disease.  Whatever you did, Thank You.  This is what it is all about.  Spreading the word about GSD and raising money for research to find a cure.  Again, Thank You.

Voting is once again open.  We were selected out of about 25,000 submissions as a Top 10 Finalist in the Toyota Sponsafier Contest.  AverysHope.org along with CureGSD.org want to spread the word about Glycogen Storage Disease to the NASCAR Nation, and you can help.  Please follow the links below to cast your vote for Avery’s Hope sponsored by CureGSD.  If we are selected as the Grand Prize Winner, Toyota will paint a NASCAR Sprint Cup Race Car in this design scheme and it will be featured at Phoenix International Speedway in the Toyota Pavilion as part of the Kobalt Tools 500 on the weekend of November 13, 2011.  Help us further the cause to find a cure for this disease.  Not only will this provide exposure and awareness to people who have previously not heard of Glycogen Storage Disease, but may open the door to research funding from one of the many sponsors involved with NASCAR.  Please vote once daily from each computer from October 5th -19th and share with as many people as possible.

Visit http://www.sponsafier.com/share/13150 and vote.  Remember, you get one vote per day, from October 5th -19th.

FYI – The page is a little slow to load, so please be patient and share this tip with all that you share with.  Also, you cannot vote from a phone unless your device is flash enabled (the iPhone/iPad are not).

Avery’s Hope T-Shirt Fundraiser.

Here is the final design for our T-Shirt Fundraiser.  We are still working out all of the details with Oxford Printwear.  What a wonderful group of people to work with!  Get the latest details by following us on Facebook.


Adult Short Sleeve:
– white, purple, brown, pink
S-XL 20.00
2X +1.00 3X +2.00

Adult Long Sleeve:
– white, purple, brown
S-XL 23.00
2X +1.00 3X +2.00

Youth Short Sleeve:
– white, purple, brown, pink
Youth S-XL 20.00

Youth Long Sleeve:
– white
Youth S-XL 23.00

If you would like to order a TShirt please email us. Please put “TShirt Order” in the Subject. Indicate in the email how many of each size and in what color you would like to order. Don’t forget to specify Short Sleeve or Long Sleeve for each selection.

The shirts are Hanes 6.1 oz/yd 100% preshrunk ComfortSoft cotton Tagless shirts. Take this into consideration when choosing a size.

We will respond to your email to confirm the final price of your order and discuss payment, pick up, delivery, or shipping options. Shipping prices, if necessary, will be based on your location in relation to ours. Minimum shipping price will be 5.00 for the 1st shirt and will increase accordingly depending on the number of shirts and your location.

This is a Pre-Order or Pre-Sell TShirt fundraiser. This means that we will take ALL orders for shirts first, and then submit the order to the print shop, which will in turn print the number of shirts that are ordered. Our plan is to take orders for about three weeks, or less depending on interest. Once we submit the order the print shop has asked for two weeks to process and print the order. So, we are looking at about a five week wait time from now until the shirts are available to be distributed.

This is our first endeavor of this kind so please be patient. Hopefully this will work as smoothly as possible. We really appreciate everyone’s interest and help in our fundraising efforts thus far. For those of you who know Avery, you know how much this means to us. We get excited thinking about everyone who knows more about Glycogen Storage Disease today than they did yesterday. Awareness is truly the key to success in finding a cure.


We have entered the Toyota Sponsafier Contest with a CureGSD.org / AverysHope.org design promoting awareness of Glycogen Storage Disease. Thanks to CureGSD.org for their cooperation and support. Please help us find a cure by voting for our design.  You get 1 vote per day for the next 15 days.  Please spread the word quickly as we were delayed in getting approval of the design and we have some catching up to do.  The winning design (hopefully ours) will be spotlighted at a future NASCAR race.  Visit http://www.sponsafier.com/share/13150 and vote.  Remember, you get one vote per day, for the next 15 days.