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Thank You for Your Support

It is time to catch up a little bit and let everyone know how successful our recent fundraising efforts have been.  First off, we would like to say Thank You to everyone who has participated in any way over the last few months.  Maybe you bought a T-shirt, or a raffle ticket, or voted on our Toyota Sponsafier submission.  Maybe all you did was tell someone about Glycogen Storage Disease.  Whatever you did, Thank You.  This is what it is all about.  Spreading the word about GSD and raising money for research to find a cure.  Again, Thank You.

Voting is once again open.  We were selected out of about 25,000 submissions as a Top 10 Finalist in the Toyota Sponsafier Contest. along with want to spread the word about Glycogen Storage Disease to the NASCAR Nation, and you can help.  Please follow the links below to cast your vote for Avery’s Hope sponsored by CureGSD.  If we are selected as the Grand Prize Winner, Toyota will paint a NASCAR Sprint Cup Race Car in this design scheme and it will be featured at Phoenix International Speedway in the Toyota Pavilion as part of the Kobalt Tools 500 on the weekend of November 13, 2011.  Help us further the cause to find a cure for this disease.  Not only will this provide exposure and awareness to people who have previously not heard of Glycogen Storage Disease, but may open the door to research funding from one of the many sponsors involved with NASCAR.  Please vote once daily from each computer from October 5th -19th and share with as many people as possible.

Visit and vote.  Remember, you get one vote per day, from October 5th -19th.

FYI – The page is a little slow to load, so please be patient and share this tip with all that you share with.  Also, you cannot vote from a phone unless your device is flash enabled (the iPhone/iPad are not).

Avery’s Hope T-Shirt Fundraiser.

Here is the final design for our T-Shirt Fundraiser.  We are still working out all of the details with Oxford Printwear.  What a wonderful group of people to work with!  Get the latest details by following us on Facebook.


Adult Short Sleeve:
– white, purple, brown, pink
S-XL 20.00
2X +1.00 3X +2.00

Adult Long Sleeve:
– white, purple, brown
S-XL 23.00
2X +1.00 3X +2.00

Youth Short Sleeve:
– white, purple, brown, pink
Youth S-XL 20.00

Youth Long Sleeve:
– white
Youth S-XL 23.00

If you would like to order a TShirt please email us. Please put “TShirt Order” in the Subject. Indicate in the email how many of each size and in what color you would like to order. Don’t forget to specify Short Sleeve or Long Sleeve for each selection.

The shirts are Hanes 6.1 oz/yd 100% preshrunk ComfortSoft cotton Tagless shirts. Take this into consideration when choosing a size.

We will respond to your email to confirm the final price of your order and discuss payment, pick up, delivery, or shipping options. Shipping prices, if necessary, will be based on your location in relation to ours. Minimum shipping price will be 5.00 for the 1st shirt and will increase accordingly depending on the number of shirts and your location.

This is a Pre-Order or Pre-Sell TShirt fundraiser. This means that we will take ALL orders for shirts first, and then submit the order to the print shop, which will in turn print the number of shirts that are ordered. Our plan is to take orders for about three weeks, or less depending on interest. Once we submit the order the print shop has asked for two weeks to process and print the order. So, we are looking at about a five week wait time from now until the shirts are available to be distributed.

This is our first endeavor of this kind so please be patient. Hopefully this will work as smoothly as possible. We really appreciate everyone’s interest and help in our fundraising efforts thus far. For those of you who know Avery, you know how much this means to us. We get excited thinking about everyone who knows more about Glycogen Storage Disease today than they did yesterday. Awareness is truly the key to success in finding a cure.


2011 Autographed SEC Coaches Ball.

The Southeastern Conference (SEC) has generously donated a football signed by all 12 current SEC coaches to Avery’s Hope. There are only 36 of these balls that were signed by the coaches during 2011 SEC Media Days, July 20th -22nd in Birmingham, Alabama.

Avery’s Hope will be selling raffle tickets over the next few months, and one lucky winner will be chosen on November 12, 2011, just in time for you to show it off during the Thanksgiving holidays.  The football will be presented in a very nice crystal styrene display case that has a UV coating to protect the signatures.

For a donation of $5.00, you will receive 1 ticket, and for an even better deal, you can get 5 tickets for a donation of $20.00. All proceeds will go to Glycogen Storage Disease research.

There are 4 college football national championship coaches on this ball. Don’t miss out on your chance to own a part of college football history.

To donate, please contact Avery’s Hope on Facebook or by email.

Signatures included:

Nick Saban – University of Alabama

Bobby Petrino – University of Arkansas

Gene Chizik – Auburn University

Will Muschamp – University of Florida

Mark Richt – University of Georgia

Joker Phillips – University of Kentucky

Les Miles – Louisiana State University

Houston Nutt – University of Mississippi

Dan Mullen – Mississippi State University

Steve Spurrier – University of South Carolina

Derek Dooley – University of Tennessee

James Franklin – Vanderbilt University

I told Avery that nobody would know who was saying “Thank You!” if she didn’t show her face in the picture.  She said, “Everyone will just have to guess who it is.”

Thank you for voting.  We received 3612 votes and hope to know in the next couple of months if the design makes the Top 10.

We have entered the Toyota Sponsafier Contest with a / design promoting awareness of Glycogen Storage Disease. Thanks to for their cooperation and support. Please help us find a cure by voting for our design.  You get 1 vote per day for the next 15 days.  Please spread the word quickly as we were delayed in getting approval of the design and we have some catching up to do.  The winning design (hopefully ours) will be spotlighted at a future NASCAR race.  Visit and vote.  Remember, you get one vote per day, for the next 15 days.